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Discover Russ Newton ALS Ride of a Lifetime
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Do not get over confident, do not get overconfident, do not get over confident.
is what I am repeating to myself now. 17 days without a vocal fold closer, yes, some close calls but none yet. Just keep everything the...

Russ Newton
Mar 16, 20222 min read
104 views
6 comments


Need vs. have.
First the back story. So as you know if you have been reading my blog I have fallen four times, the last time took me to the emergency...

Russ Newton
Mar 16, 20222 min read
201 views
9 comments


A Miracle!
I had an appointment today to receive a second round of Botox to control my excess saliva. I experience another Miracle today. A doctor...

Russ Newton
Mar 15, 20221 min read
161 views
11 comments


15 days!
and counting. No close calls so far today. Hoping I can get this streak to over 20.

Russ Newton
Mar 14, 20221 min read
97 views
0 comments


Update on Crying
Thank you all of you for your support. I had a touching moment with my caregiver and I hope none of you got the idea I was shamed by the...

Russ Newton
Mar 14, 20221 min read
150 views
6 comments


A day in the life of a Mute person.
I am trying for the second time to get a First Alert system. I gave up the first time because they kept calling me. I had hopes the...

Russ Newton
Mar 14, 20224 min read
157 views
9 comments


Crying
I was talking with my caregiver tonight and she called me courageous. And that trigger me somehow because I starting crying. Really hard....

Russ Newton
Mar 13, 20221 min read
205 views
6 comments


13 Days, barely....
...without breathing issues. I have had several close calls including a call back to a way I used to lose wind. I finished refueling (I...

Russ Newton
Mar 12, 20221 min read
124 views
2 comments


10 Days!
without an incident of not breathing. Several close calls but never entered the cycle of not breathing/breathing. I am going to call it...

Russ Newton
Mar 9, 20221 min read
166 views
10 comments


Had a craving for Pizza. So I ordered one.
I drove up to Kingston Wisconsin and visted my Mothers Grave. I prayed that I would see her soon and had a conversation in my my head...

Russ Newton
Mar 6, 20221 min read
242 views
4 comments


The next step down the path, willingly and with eagerness!
I have hired a caretake to look after me. She started last night and will staff the 7pm to 9pm shift 5 days a week. The a different...

Russ Newton
Mar 4, 20221 min read
267 views
9 comments


Update on experiment.
So the experiment almost worked too well. I woke up at 4am and felt like I was about to lose my ability to breath but I didn't. Happened...

Russ Newton
Mar 2, 20221 min read
186 views
3 comments


Experiments in Chemistry
So I am trying to solve the not breathing issue if possible. So I have been developing a theory that excess saliva is causing the vocal...

Russ Newton
Mar 1, 20221 min read
118 views
0 comments


Heroic "having the characteristics of a hero or heroine; very brave."
I have been called this by a few friends and I reject it. I am a plenty scared of dying and I get scared of losing mobility, I get scared...

Russ Newton
Mar 1, 20222 min read
197 views
19 comments


The move down stairs is complete.
This is my bed in its new location in the kitchen. Note the fan which I use to breathe at night and the expensive machine I am supposed...

Russ Newton
Feb 28, 20222 min read
152 views
7 comments
Well it was too good to last.
I was going to post tomorrow I was at nine days without a breathing incident, that I was feeling almost healed from my hematoma injury...

Russ Newton
Feb 27, 20221 min read
108 views
0 comments


Chicago Tribune Remembered and grab bag.
By Dan Kunz stopping by and visiting me yesterday. I was a shift supervisor and Dan was a crew supervisor. We were all new to the job....

Russ Newton
Feb 27, 20222 min read
155 views
0 comments


Blind Spot
And was it ever a big one. I thought I was a fairly smart person. Not smart but I don't do stupid things which I have said all my life is...

Russ Newton
Feb 24, 20222 min read
164 views
4 comments


Charlie Munger, partner of Warren Buffett.
We are going to miss these newspapers terribly," Munger said at the Daily Journal's annual shareholders meeting on Wednesday. “Each...

Russ Newton
Feb 23, 20221 min read
136 views
2 comments


Emergency room for two days!
I took 800mgs of Advil at 5:30pm on Monday. Sat down and read a book for an hour and a half. Got up and felt like I was shot in the lower...

Russ Newton
Feb 22, 20222 min read
196 views
3 comments
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