Russ Newton
Last update for a few days.
First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running...
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Russ Newton
- Dec 25, 2021
- 1 min
Correction. I am a dumb ass.
Well I went back to sleep and I woke up at 7am coughing and not able to breathe. And like the last time, it happen twice. But this time I...
133 views1 comment
Russ Newton
- Dec 25, 2021
- 1 min
Sorry to start Christmas with breathing news.
But I woke up at 3:53am today and started coughing really bad which is now how I trigger an episode of not breathing. I sat up, then walk...
125 views1 comment
Russ Newton
- Dec 23, 2021
- 1 min
Blown Away.
By Nina Lee's package to me today. I opened it up and there were two smaller boxes in there. One said open right away, contains a...
238 views7 comments
Russ Newton
- Dec 22, 2021
- 2 min
Adventures with solid food. (blended down so I can ingest via my peg tube)
Stuffed shells tonight. And not made as suggested by this photo. I made mine in a stove top pan. Added some sausage flavored pasta sauce...
89 views3 comments
Russ Newton
- Dec 21, 2021
- 1 min
The drooling has stopped!
At around noon today I took the rag out of my mouth for the first time in 9 days. And I have had it out for an hour and half. So five...
143 views14 comments
Russ Newton
- Dec 18, 2021
- 1 min
A family picture.
Left to right. Bill and his wife Jane Cruckson. Robert and Dolores Newton. Fred and Vivian Cruckson. And the Patriarch of the family,...
89 views0 comments
Russ Newton
- Dec 17, 2021
- 2 min
ACT for ALS Passes in the Senate! December 16, 2021
Tonight infused us with hope and inspiration. Tonight, ACT for ALS passed in the Senate because tens of thousands of you took action...
110 views1 comment
Russ Newton
- Dec 17, 2021
- 1 min
Best Beef Ribs!
This is the smaller of the two racks of ribs I got today from 2M. And they blew me away again. They gave me a free rack of ribs, again....
89 views0 comments
Russ Newton
- Dec 16, 2021
- 1 min
Delayed Gratification
The good news? I did get my Botox treatment today. The not so good news? Rags will be part of my future for a week. That is how long it...
98 views2 comments
Russ Newton
- Dec 15, 2021
- 1 min
Oreo's and Milk. Just because sometimes.
So this post is for anyone with ALS that has lost the ability to eat by mouth. Sometimes, when I am a little low about not being able to...
120 views2 comments
Russ Newton
- Dec 14, 2021
- 2 min
Scratch that, good news!
I saw my ALS doctor in San Antonio today. And I was apparently able to impress on her and her associate how badly I needed relief from...
170 views9 comments
Russ Newton
- Dec 13, 2021
- 1 min
A Couple of refugees from Wisconsin!
Met Jim and Jeane Sniff today at the infamous Friendly Spot outdoor bar. Had a good time chatting with them both. Visit for about an hour...
117 views1 comment
Russ Newton
- Dec 12, 2021
- 1 min
More than you want to know about Rags!
So when you have ALS you think a lot about your mortality. And when you have colored rags in your mouth for 24 hours a day you start to...
109 views0 comments
Russ Newton
- Dec 11, 2021
- 1 min
Going Crazy.
I am getting close to losing it. I have to have a rag in my mouth 24 hours a day now. I can not control the drooling any other way. And I...
133 views4 comments
Russ Newton
- Dec 9, 2021
- 2 min
How I eat.
This is what I need to eat. A glass, a 150ml syringe, a tube to access the "peg" I have implanted in my lower chest and the actual food I...
100 views2 comments
Russ Newton
- Dec 8, 2021
- 2 min
Update on Hermiting
I missed the opportunity to explain this in my last post. So here it is now. This is just one of the many reasons I have hermited up. I...
139 views4 comments
Russ Newton
- Dec 7, 2021
- 1 min
Guest Post Chip Crozier
Russ, you are to be commended and are truly an inspiration in every sense of the word. I have never known anyone else who has tried so...
106 views4 comments