Discover Russ Newton ALS Ride of a Lifetime

First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running...

So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up...

Well I went back to sleep and I woke up at 7am coughing and not able to breathe. And like the last time, it happen twice. But this time I...

But I woke up at 3:53am today and started coughing really bad which is now how I trigger an episode of not breathing. I sat up, then walk...

By Nina Lee's package to me today. I opened it up and there were two smaller boxes in there. One said open right away, contains a...

Stuffed shells tonight. And not made as suggested by this photo. I made mine in a stove top pan. Added some sausage flavored pasta sauce...

At around noon today I took the rag out of my mouth for the first time in 9 days. And I have had it out for an hour and half. So five...

Left to right. Bill and his wife Jane Cruckson. Robert and Dolores Newton. Fred and Vivian Cruckson. And the Patriarch of the family,...

Tonight infused us with hope and inspiration. Tonight, ACT for ALS passed in the Senate because tens of thousands of you took action...

This is the smaller of the two racks of ribs I got today from 2M. And they blew me away again. They gave me a free rack of ribs, again....

The good news? I did get my Botox treatment today. The not so good news? Rags will be part of my future for a week. That is how long it...

So this post is for anyone with ALS that has lost the ability to eat by mouth. Sometimes, when I am a little low about not being able to...

I saw my ALS doctor in San Antonio today. And I was apparently able to impress on her and her associate how badly I needed relief from...

Met Jim and Jeane Sniff today at the infamous Friendly Spot outdoor bar. Had a good time chatting with them both. Visit for about an hour...

So when you have ALS you think a lot about your mortality. And when you have colored rags in your mouth for 24 hours a day you start to...

I am getting close to losing it. I have to have a rag in my mouth 24 hours a day now. I can not control the drooling any other way. And I...

This is what I need to eat. A glass, a 150ml syringe, a tube to access the "peg" I have implanted in my lower chest and the actual food I...

I missed the opportunity to explain this in my last post. So here it is now. This is just one of the many reasons I have hermited up. I...

Russ, you are to be commended and are truly an inspiration in every sense of the word. I have never known anyone else who has tried so...