Russ NewtonDec 26, 20211 minLast update for a few days.First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running...
Russ NewtonDec 26, 20211 minUpdate.So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up...
Russ NewtonDec 25, 20211 minCorrection. I am a dumb ass.Well I went back to sleep and I woke up at 7am coughing and not able to breathe. And like the last time, it happen twice. But this time I...
Russ NewtonDec 25, 20211 minSorry to start Christmas with breathing news.But I woke up at 3:53am today and started coughing really bad which is now how I trigger an episode of not breathing. I sat up, then walk...
Russ NewtonDec 23, 20211 minBlown Away. By Nina Lee's package to me today. I opened it up and there were two smaller boxes in there. One said open right away, contains a...
Russ NewtonDec 23, 20212 minAdventures with solid food. (blended down so I can ingest via my peg tube)Stuffed shells tonight. And not made as suggested by this photo. I made mine in a stove top pan. Added some sausage flavored pasta sauce...
Russ NewtonDec 21, 20211 minThe drooling has stopped!At around noon today I took the rag out of my mouth for the first time in 9 days. And I have had it out for an hour and half. So five...
Russ NewtonDec 18, 20211 min A family picture. Left to right. Bill and his wife Jane Cruckson. Robert and Dolores Newton. Fred and Vivian Cruckson. And the Patriarch of the family,...
Russ NewtonDec 17, 20212 minACT for ALS Passes in the Senate! December 16, 2021Tonight infused us with hope and inspiration. Tonight, ACT for ALS passed in the Senate because tens of thousands of you took action...
Russ NewtonDec 17, 20211 minBest Beef Ribs!This is the smaller of the two racks of ribs I got today from 2M. And they blew me away again. They gave me a free rack of ribs, again....
Russ NewtonDec 17, 20211 minDelayed GratificationThe good news? I did get my Botox treatment today. The not so good news? Rags will be part of my future for a week. That is how long it...
Russ NewtonDec 16, 20211 minOreo's and Milk. Just because sometimes.So this post is for anyone with ALS that has lost the ability to eat by mouth. Sometimes, when I am a little low about not being able to...
Russ NewtonDec 14, 20212 minScratch that, good news!I saw my ALS doctor in San Antonio today. And I was apparently able to impress on her and her associate how badly I needed relief from...
Russ NewtonDec 14, 20211 minA Couple of refugees from Wisconsin!Met Jim and Jeane Sniff today at the infamous Friendly Spot outdoor bar. Had a good time chatting with them both. Visit for about an hour...
Russ NewtonDec 12, 20211 minMore than you want to know about Rags!So when you have ALS you think a lot about your mortality. And when you have colored rags in your mouth for 24 hours a day you start to...
Russ NewtonDec 12, 20211 minGoing Crazy.I am getting close to losing it. I have to have a rag in my mouth 24 hours a day now. I can not control the drooling any other way. And I...
Russ NewtonDec 9, 20212 minHow I eat. This is what I need to eat. A glass, a 150ml syringe, a tube to access the "peg" I have implanted in my lower chest and the actual food I...
Russ NewtonDec 9, 20212 minUpdate on HermitingI missed the opportunity to explain this in my last post. So here it is now. This is just one of the many reasons I have hermited up. I...
Russ NewtonDec 7, 20211 minGuest Post Chip CrozierRuss, you are to be commended and are truly an inspiration in every sense of the word. I have never known anyone else who has tried so...