Russ Newton
Bad Fall last night. Update.
Went the emergency room tonight. Fell down getting into the uber but not because of ALS but because it is icy out. ALS stopped me from...
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Russ Newton
- Feb 19, 2022
- 2 min
Cribbage.
I realize the posts have been a little dreary lately. So time for fun! One good thing about coming back to where I was born and...
150 views8 comments
Russ Newton
- Feb 19, 2022
- 1 min
Again.
I laid down to go to sleep tonight at 11:45pm. I did everything like I have been doing it for the past 19 days. No deviation. And I was...
179 views6 comments
Russ Newton
- Feb 17, 2022
- 3 min
Follow up failure by a resource to 'help' ALS Patients.
Hi Russ, I’ve been reviewing the eligibility criteria for all the interventional ALS trials currently enrolling in Wisconsin and Texas...
145 views0 comments
Russ Newton
- Feb 13, 2022
- 2 min
Getting close to the end but there is a faint hope.
I am coming to the end of what I can deal with with ALS. First up, can't speak. And can't eat. And have to suck fluid from my lungs every...
284 views13 comments
Russ Newton
- Feb 12, 2022
- 1 min
Pre Wake Party.
At my house last night. I was cooking most of the night and several of my friends tried to get me involved in the animated discussions...
306 views4 comments
Russ Newton
- Feb 10, 2022
- 2 min
What ALS patients have to put up with.
Here is a great example of what I have discovered about ALS. Once you get past a certain point in the illness, you get basically told you...
190 views9 comments
Russ Newton
- Feb 9, 2022
- 2 min
Solution?
I don't think so. Though I had a very good meeting with the Pulmonologist. He is going to reach out to the company that provided the...
118 views2 comments
Russ Newton
- Feb 9, 2022
- 1 min
Next Stage
I will start by stating the human mind is incredible. Right now I am impressed with how I have transitioned from thinking I would kill...
167 views2 comments
Russ Newton
- Feb 6, 2022
- 1 min
Early Lesson in Management From Joe Cantrell.
I was the pressroom manager at the Daily Press from 1987 to 1994. Early in my time there I learned an important lesson from Joe, the...
150 views0 comments
Russ Newton
- Feb 5, 2022
- 1 min
Caught up with a friend, from work a long time ago!
Sue Peters was working in Finance as a planner I believe when I was the pressroom manager at the Daily Press. She was a good friend to me...
136 views0 comments
Russ Newton
- Feb 4, 2022
- 1 min
Results from my visit to the doctor today.
Well that was different. I didn't get strength tested and I didn't get my gait observed but I did get an answer to a question that was...
212 views0 comments
Russ Newton
- Feb 3, 2022
- 1 min
Department of Justice Response to My complaint.
Dear Russell Newton, You contacted the Department of Justice on January 11, 2022. After careful review of what you submitted, we have...
190 views2 comments
Russ Newton
- Feb 2, 2022
- 2 min
Guest Post - Jeff Johnson
So I was an analyst in the pressroom of the Chicago Tribune in 1986 (imagine the business was so strong we had a full time analyst...
242 views5 comments
Russ Newton
- Feb 1, 2022
- 2 min
Updated. Todays State of Mind. An apology.
So I enter my third day of battle with ALS fluid in the throat. And I happy to report I woke up at 4:10am today due to hydrologic...
177 views7 comments
Russ Newton
- Jan 31, 2022
- 2 min
My current state of mind.
I will describe to you what the process of dying from ALS feels like from my perspective. It is a strange way to die for sure. I feel...
272 views12 comments
Russ Newton
- Jan 31, 2022
- 1 min
A different kind of post
I noticed a charge on my Amex account for over $400 to Air BNB. I get notified when ever there is a charge made without the card present....
140 views2 comments
Russ Newton
- Jan 29, 2022
- 1 min
Different outcome last night.
I went to sleep at about 11pm. I woke up at 3am and started to cough and I felt like I did the night before, I was about to stop...
151 views9 comments
Russ Newton
- Jan 28, 2022
- 1 min
Can't Breathe! Again.
Woke up at 5am this am and didn't feel right. Not sure how to describe it other than not feeling right. I was slightly congested so that...
131 views9 comments
Russ Newton
- Jan 27, 2022
- 5 min
A friend and how we became friends.
This will be a long story I am afraid but I feel motivated to tell it tonight so bear with me. I am going to tell you all about a friend...
205 views6 comments
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