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Discover Russ Newton ALS Ride of a Lifetime
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Bad Fall last night. Update.
Went the emergency room tonight. Fell down getting into the uber but not because of ALS but because it is icy out. ALS stopped me from...

Russ Newton
Feb 21, 20222 min read


Cribbage.
I realize the posts have been a little dreary lately. So time for fun! One good thing about coming back to where I was born and...

Russ Newton
Feb 19, 20222 min read


Again.
I laid down to go to sleep tonight at 11:45pm. I did everything like I have been doing it for the past 19 days. No deviation. And I was...

Russ Newton
Feb 19, 20221 min read
Follow up failure by a resource to 'help' ALS Patients.
Hi Russ, I’ve been reviewing the eligibility criteria for all the interventional ALS trials currently enrolling in Wisconsin and Texas...

Russ Newton
Feb 17, 20223 min read


Getting close to the end but there is a faint hope.
I am coming to the end of what I can deal with with ALS. First up, can't speak. And can't eat. And have to suck fluid from my lungs every...

Russ Newton
Feb 13, 20222 min read


Pre Wake Party.
At my house last night. I was cooking most of the night and several of my friends tried to get me involved in the animated discussions...

Russ Newton
Feb 12, 20221 min read
What ALS patients have to put up with.
Here is a great example of what I have discovered about ALS. Once you get past a certain point in the illness, you get basically told you...

Russ Newton
Feb 10, 20222 min read


Solution?
I don't think so. Though I had a very good meeting with the Pulmonologist. He is going to reach out to the company that provided the...

Russ Newton
Feb 9, 20222 min read


Next Stage
I will start by stating the human mind is incredible. Right now I am impressed with how I have transitioned from thinking I would kill...

Russ Newton
Feb 9, 20221 min read


Early Lesson in Management From Joe Cantrell.
I was the pressroom manager at the Daily Press from 1987 to 1994. Early in my time there I learned an important lesson from Joe, the...

Russ Newton
Feb 6, 20221 min read


Caught up with a friend, from work a long time ago!
Sue Peters was working in Finance as a planner I believe when I was the pressroom manager at the Daily Press. She was a good friend to me...

Russ Newton
Feb 5, 20221 min read


Results from my visit to the doctor today.
Well that was different. I didn't get strength tested and I didn't get my gait observed but I did get an answer to a question that was...

Russ Newton
Feb 4, 20221 min read


Department of Justice Response to My complaint.
Dear Russell Newton, You contacted the Department of Justice on January 11, 2022. After careful review of what you submitted, we have...

Russ Newton
Feb 3, 20221 min read


Guest Post - Jeff Johnson
So I was an analyst in the pressroom of the Chicago Tribune in 1986 (imagine the business was so strong we had a full time analyst...

Russ Newton
Feb 1, 20222 min read


Updated. Todays State of Mind. An apology.
So I enter my third day of battle with ALS fluid in the throat. And I happy to report I woke up at 4:10am today due to hydrologic...

Russ Newton
Feb 1, 20222 min read


My current state of mind.
I will describe to you what the process of dying from ALS feels like from my perspective. It is a strange way to die for sure. I feel...

Russ Newton
Jan 31, 20222 min read


A different kind of post
I noticed a charge on my Amex account for over $400 to Air BNB. I get notified when ever there is a charge made without the card present....

Russ Newton
Jan 30, 20221 min read


Different outcome last night.
I went to sleep at about 11pm. I woke up at 3am and started to cough and I felt like I did the night before, I was about to stop...

Russ Newton
Jan 29, 20221 min read


Can't Breathe! Again.
Woke up at 5am this am and didn't feel right. Not sure how to describe it other than not feeling right. I was slightly congested so that...

Russ Newton
Jan 28, 20221 min read
A friend and how we became friends.
This will be a long story I am afraid but I feel motivated to tell it tonight so bear with me. I am going to tell you all about a friend...

Russ Newton
Jan 27, 20225 min read
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