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  • Writer's pictureRuss Newton

Can't Breathe! Again.

Woke up at 5am this am and didn't feel right. Not sure how to describe it other than not feeling right. I was slightly congested so that made breathing a little harder. But I thought I might be able to get back to sleep. Not to be. I started to have difficulty breathing and started to cough. Not a good sign. So i went downstairs and used the cough device to force air down my breathing system. And that seem to work for awhile. Then I entered a cycle of breathing for a minute and than not being able to breathe. For about 20 minutes. During bouts of breathing i attempted to clean out the suction device. But then got caught by another bout of not breathing. I will be honest, this is getting very tiring indeed. Not sure how long I can put up with this. I do have one clue. The only thing I did different last night was have one stinking glass of wine. I downed a bottle of Pedialyte after the one glass so I thought that would be enough. But that was the only outlier in my behavior last night so now I will cut all alcohol out of my diet. And see if that stops this from happening.


Sigh,

Sometimes it really sucks to have ALS.


Russ


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dan
Jan 29, 2022

Russ,

Did you look into possibly getting a CPAP machine? As I mentioned before, I've used one for over 20 years. I'm pretty sure it would work better than a fan to keep you breathing while you sleep. Plus, it humidifies the air; so you wouldn't get as dried out.


You normally have to have a sleep study to get a prescription for one; but I would think your doctor could make an exception in your case.

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dan
Jan 30, 2022
Replying to

I'm glad to hear that! I'm hoping it will make a big difference for you. It takes some getting used to: but that describes everything you are doing right now.

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Colin Rudowski
Colin Rudowski
Jan 28, 2022

Russ Are you injecting it into your stomach or by mouth?

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Russ Newton
Russ Newton
Feb 03, 2022
Replying to

I hope so. I had big plans to reread my collection of books when I was going to retire and live for twenty or so more years. . Now I am racing to finish the pile of 40 or so new books I have yet to read.

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