Woke up at 5am this am and didn't feel right. Not sure how to describe it other than not feeling right. I was slightly congested so that made breathing a little harder. But I thought I might be able to get back to sleep. Not to be. I started to have difficulty breathing and started to cough. Not a good sign. So i went downstairs and used the cough device to force air down my breathing system. And that seem to work for awhile. Then I entered a cycle of breathing for a minute and than not being able to breathe. For about 20 minutes. During bouts of breathing i attempted to clean out the suction device. But then got caught by another bout of not breathing. I will be honest, this is getting very tiring indeed. Not sure how long I can put up with this. I do have one clue. The only thing I did different last night was have one stinking glass of wine. I downed a bottle of Pedialyte after the one glass so I thought that would be enough. But that was the only outlier in my behavior last night so now I will cut all alcohol out of my diet. And see if that stops this from happening.
Sigh,
Sometimes it really sucks to have ALS.
Russ
