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  • Writer's pictureRuss Newton


I don't think so. Though I had a very good meeting with the Pulmonologist. He is going to reach out to the company that provided the breathing unit I can't use. The company that does not respond to my texts consistently. And I told him about that issue and he assured me they would get through. If only I could talk. But he comforted me and explained that the issue I was having was called a Laryngospasm.

(luh-RING-go-spaz-um) is a transient and reversible spasm of the vocal cords that temporarily makes it difficult to speak or breathe. The vocal cords are two fibrous bands inside the voice box (larynx) at the top of the windpipe (trachea). The onset of a vocal cord spasm is sudden, and just as suddenly, it goes away, usually after a few minutes. The breathing difficulty can be alarming, but it's not life-threatening.

It was the most detailed explanation I have gotten since this started six months ago and it makes sense. It is a direct result of the neurons in my brain which are dying which is the classic definition of ALS.

Sadly, nothing can prevent this from happening other than what I am already doing. But he did send me home with a device I will wear tonight it will measure my intake of oxygen throughout the night. Then I mail it back to him and he reviews the results. Oh, and my blood oxygen level was at 98% today when measure in his office. Almost normal. He also listen to my lungs and said they were fine in the upper quadrant but weak in the lower lobes. Typical for Bulbar Onset ALS at the stage I am in.

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Russ Newton
Russ Newton
Feb 10, 2022

John, Good. The only unusual issue was wearing the monitor which caused me to wake up three times. But able fall back to sleep and got a solid 7 hours of sleep. Feel good today and started prepping for tomorrow! Russ


Feb 10, 2022

How was your night?

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