Discover Russ Newton ALS Ride of a Lifetime

I happened on a solution for a problem I have been having. Because I drool so badly it can be difficult to fall asleep. Last night I hit...

Merry Christmas, Happy Hanukah .. Happy holidays to everyone!! Russ said something to me the other day that stung a bit. He suggested...

Heard from an old friend today that found the blog on his own. He retired nine years ago, that is why I didn't have his contact info. His...

Pulled in at 11:30pm Friday. An hour in and we have everything in from the car and most it in the right place. That is all for now, tired...

Road trip! Starts today. Last road trip I will take I fear but hope is always there and maybe I will. Logic looms and defeats hope...

Jim Creeron stopped yesterday and we had a nice chat. I knew Jim from Frank Allis Elementary school where we first met. We hung out a bit...

Jim Pagel and his wife invited me over to their house for Thanksgiving. I had a great time due in part to their understanding of my...

The good news? I was scheduled for my Botox procedure. The bad news? Not until January 8th, 2022. So I will have to deal with drooling a...

So I have been waiting to get schedule for a procedure to resolve my excess drooling. I think that is cause of the most recent attacks....

Well I had a good day until the end of it. About 11:30am I was getting ready to go to bed and I had to cough. I coughed. Then that...

It should be no surprise that I find myself craving food almost 100% of the time. The worst is when I am watching TV. 2/3s of all...

Note, I was told I should hear something in a week. I messaged back that was not acceptable to me, I was having significant issues with...

I woke up slowly as I had a ridiculous amount of saliva in my mouth. Then I started to cough. This was the same pattern the last time...

So I hate to tell you all this but I am in the last innings of my life. The last full assessment at my doctors office noted weakness on...

There is a viral disease Where most infections are mild, asymptomatic With a very low fatality rate And large age gradient: kids are even...

Well it is early to claim victory over the most recent bout of not breathing but I did make it through last night without a reoccurrence...

I woke up today at 3am today unable to breathe. I had a horrible coughing fit and then I was gasping for air. This time it lasted about...

So I have written on this blog several times my frustration over not being able to speak. I receive a reply from one of the nine people I...

A date I didn't think I would make. On the day I was diagnosed, I had 22 months to live according to the National Library of Medicine....