Russ NewtonDec 6, 20211 minSolution for sleep!I happened on a solution for a problem I have been having. Because I drool so badly it can be difficult to fall asleep. Last night I hit...
Russ NewtonDec 5, 20212 minGuest Post Merry Christmas, Happy Hanukah .. Happy holidays to everyone!! Russ said something to me the other day that stung a bit. He suggested...
Russ NewtonDec 4, 20211 minOld FriendsHeard from an old friend today that found the blog on his own. He retired nine years ago, that is why I didn't have his contact info. His...
Russ NewtonDec 4, 20211 minWe made it to San Antonio! Pulled in at 11:30pm Friday. An hour in and we have everything in from the car and most it in the right place. That is all for now, tired...
Russ NewtonDec 2, 20211 minRoadtrip!Road trip! Starts today. Last road trip I will take I fear but hope is always there and maybe I will. Logic looms and defeats hope...
Russ NewtonNov 28, 20212 minA rare visitor.Jim Creeron stopped yesterday and we had a nice chat. I knew Jim from Frank Allis Elementary school where we first met. We hung out a bit...
Russ NewtonNov 26, 20211 minThanksgivingJim Pagel and his wife invited me over to their house for Thanksgiving. I had a great time due in part to their understanding of my...
Russ NewtonNov 25, 20211 minGood News/Bad NewsThe good news? I was scheduled for my Botox procedure. The bad news? Not until January 8th, 2022. So I will have to deal with drooling a...
Russ NewtonNov 23, 20211 minUpdate on my rough nightSo I have been waiting to get schedule for a procedure to resolve my excess drooling. I think that is cause of the most recent attacks....
Russ NewtonNov 21, 20211 minRough time last night. Well I had a good day until the end of it. About 11:30am I was getting ready to go to bed and I had to cough. I coughed. Then that...
Russ NewtonNov 20, 20213 minCravings.It should be no surprise that I find myself craving food almost 100% of the time. The worst is when I am watching TV. 2/3s of all...
Russ NewtonNov 20, 20211 minDrooling Solution?Note, I was told I should hear something in a week. I messaged back that was not acceptable to me, I was having significant issues with...
Russ NewtonNov 15, 20211 minWoke up at 1am again with excess Saliva and not able to breath. I woke up slowly as I had a ridiculous amount of saliva in my mouth. Then I started to cough. This was the same pattern the last time...
Russ NewtonNov 12, 20212 minLatest update on my health.So I hate to tell you all this but I am in the last innings of my life. The last full assessment at my doctors office noted weakness on...
Russ NewtonNov 10, 20211 min Ashish K. Jha, MD, MPH There is a viral disease Where most infections are mild, asymptomatic With a very low fatality rate And large age gradient: kids are even...
Russ NewtonNov 7, 20211 minUpdate on sleepingWell it is early to claim victory over the most recent bout of not breathing but I did make it through last night without a reoccurrence...
Russ NewtonNov 6, 20211 minWell that sucks. Updated.I woke up today at 3am today unable to breathe. I had a horrible coughing fit and then I was gasping for air. This time it lasted about...
Russ NewtonNov 3, 20211 minUpdate on frustration with not being able to speak. A solution presents itself.So I have written on this blog several times my frustration over not being able to speak. I receive a reply from one of the nine people I...
Russ NewtonNov 1, 20211 minTwo year anniversary of my diagnoses of Bulbar Onset ALS. A date I didn't think I would make. On the day I was diagnosed, I had 22 months to live according to the National Library of Medicine....