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  • Writer's pictureRuss Newton

Latest update on my health.


So I hate to tell you all this but I am in the last innings of my life. The last full assessment at my doctors office noted weakness on my left side. Weak arm, weak fingers weak feet and legs. I am dropping my left foot anytime I am out in public now but for some reason not at home. But here are some of the new symptoms. My left hand pointing finger starting moving without any command from me to the brain. ALS is now in control. It went up and left. Freaky. The second thing that reminds me of the last inning is when I try to button my blue jeans, it is getting almost, not quite yet, impossible. And yes, I do try to take a drink of something every once in awhile and I stop breathing and cough for five minutes after I attempt. it. (Five minutes of coughing, one minute of whooping for air) So what am I going to do? Well of course I am going to stop trying to drink anything. Road Trip. Yep, I am going to head to my home in Texas for the month of December. A good friend is going to accompany me on the drive down and the drive back as I may lose the ability to drive before I leave or when I want to come back. So I will have a designated driver with me, Mark Dytayo. Now I am not implying the end is coming up in the next couple of weeks. But I am thinking I may have two or three months left. And I am not afraid of dying at this point. I have a great life, so many unique experiences that I don't feel cheated. And lets say I didn't get ALS. I am at a high risk for Alzheimer's, early onset or late onset. My mom died of early onset at 67. And I am already seeing some minor difficulties with short term memory. Could just be age or could it be a sign? I would love to find out but ALS is a demanding disease and will not relent so I guess I won't find out. So I still hope to keep posting on the blog but I will have a friend write on the blog when I can no longer do so. Russ

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Last update for a few days.

First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running smooth. Taking off for the chilly North in a few minutes. Should g

Update.

So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up with three 16 ounces of water. And not breathing difficulties to

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John LaBreche
John LaBreche
2021년 12월 17일

HI RUSS. johnny LaBee LaBreche here. I am sorry to hear about the ALS. I loved growing up with you at the Nasholds house in Madison. You and the guys were always nice to me even though I went to Edgewood. I love yah buddy and and will pray for you.

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Russ Newton
Russ Newton
2021년 12월 17일
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John, Thank you so much for the kind words. Those were some magical times weren't they? Amazing group of guys to hand out with for sure. Russ

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offngon
offngon
2021년 11월 21일

Hi Honey, Sorry your having so many things happening all at once. I hope you and Mark have a good trip to Texas, and you have good weather down there. You know you are always in my thoughts and prayers. I am back in MI. and plan to spend Thanksgiving and Christmas with Jackie, Dale, and Sindy and her family. It is cold here and snow is coming this next week. Be sure you have yourself or a friend keep us updated. I love you LOTS, and pray very hard for you. 😍 Aunt Jane

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stephdiliberto8
2021년 11월 16일

Enjoy your trip to Texas! You are in my thoughts & prayers❤️ Cousin Steph

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stephdiliberto8
2021년 11월 17일
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♥️

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jcraig4902
jcraig4902
2021년 11월 15일

I love you my brother... and sending all my good energy your way.

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jcraig4902
jcraig4902
2021년 11월 23일
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So very true!

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Dre Thomas
Dre Thomas
2021년 11월 12일

I will keep you in my prayers. Love you Russ.


Andre T.

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Russ Newton
Russ Newton
2021년 11월 12일
답글 상대:

Thank you Dre, I appreciate it. No worries about me, I had a good life and I am eager to move on to the next stage. Love you to and so happy you were my successor. Russ

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