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  • Writer's pictureRuss Newton

Well that sucks. Updated.

I woke up today at 3am today unable to breathe. I had a horrible coughing fit and then I was gasping for air. This time it lasted about five minutes. I was able to get enough air in to avoid passing out, but it was very uncomfortable for the entire five minutes. This is a new thing for me. I wasn't eating which is what triggered prior episodes of not being able to breathe. I was sleeping so I am guessing I was trying to swallow some of the excess saliva I am victim of these days. So I don't know if I am going to be able to fall asleep again or not.


While I was writing the above it happened again. So I went downstairs and recovered and then read for two hours and it didn't happen again so I am going to attempt to lay down and get some more sleep.

Update. i woke up today at 10:45am today feeling good. I did inject a bottle of Pedialyte at 3am on the theory I was dehydrated. Don't know if that was right but I did sleep fine though with a couple of visits to the bathroom!

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Last update for a few days.

First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running smooth. Taking off for the chilly North in a few minutes. Should g

Update.

So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up with three 16 ounces of water. And not breathing difficulties to

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Russ Newton
Russ Newton
Nov 06, 2021

Courage? No Courage just fact based. Because of ALS I have a very sensitive nerve in my throat that controls the flap on top of all of our windpipe that protects the lungs if it feels something going down your throat the wrong way. I won't die from it but it seems to have amped its game up and is now reacting to the excess saliva I have now it is an annoyance and not a fun way to wake up for sure!.

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Mark Dtayo
Mark Dtayo
Nov 06, 2021

:(

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sally.r.baxter
sally.r.baxter
Nov 06, 2021

I'm so sorry to hear this. Your courage is amazing! Hugs to you!

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