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  • Writer's pictureRuss Newton

Update on sleeping

Well it is early to claim victory over the most recent bout of not breathing but I did make it through last night without a reoccurrence and that is a good thing. I can't tell you how I inferred this but I thing good hydration is tied up with this. My doctors seemed to worry about me taking too much of the anti Saliva medication and I have been taking all three medications at their full dosses. So last night I took a full bottle of Pedialyte at 9pm and thing that may have helped. I also messaged my doctor to get his thoughts but he isn't a weekend responder so I will wait and see what he says I should do. Anyways, it didn't repeat itself and that is a good sign because ALS doesn't usually back off on a symptom . .


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Last update for a few days.

First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running smooth. Taking off for the chilly North in a few minutes. Should g

Update.

So I hydrated like heck today. I took in two bottles of Pedialyte, 33.8 ounces each and 6 355ml of Jevity liquid protein and follow up with three 16 ounces of water. And not breathing difficulties to

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dan
09 nov. 2021

Russ,

I know you aren't interested in a ventilator; but I wonder if a CPAP would help you. I've used one for 20 years. I can't even take a nap without it, or I'll quickly wake up feeling like I am suffocating. I know your situation is completely different from mine; but the effect on your breathing, during sleep, seems very similar.

There are two types of sleep apnea. One, 'Obstructive Sleep Apnea', is just the result of the air passages relaxing, and closing, when you fall asleep. The other type is 'Central Sleep Apnea'. In that case your body stops commanding you to breath. I seem to suffer from both kinds. Using my CPAP completely stops the symptoms from…

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dan
12 nov. 2021
En réponse à

One more thing:

Before I was diagnosed with Sleep Apnea, I frequently experienced acid reflux in my sleep. The CPAP eliminated that as well. No one even brought that up when I was diagnosed. I just discovered it on my own. So, you just never know what may happen until you try.

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