Discover Russ Newton ALS Ride of a Lifetime

Met Jim and Jeane Sniff today at the infamous Friendly Spot outdoor bar. Had a good time chatting with them both. Visit for about an hour...

So when you have ALS you think a lot about your mortality. And when you have colored rags in your mouth for 24 hours a day you start to...

I am getting close to losing it. I have to have a rag in my mouth 24 hours a day now. I can not control the drooling any other way. And I...

This is what I need to eat. A glass, a 150ml syringe, a tube to access the "peg" I have implanted in my lower chest and the actual food I...

I missed the opportunity to explain this in my last post. So here it is now. This is just one of the many reasons I have hermited up. I...

Russ, you are to be commended and are truly an inspiration in every sense of the word. I have never known anyone else who has tried so...

I happened on a solution for a problem I have been having. Because I drool so badly it can be difficult to fall asleep. Last night I hit...

Merry Christmas, Happy Hanukah .. Happy holidays to everyone!! Russ said something to me the other day that stung a bit. He suggested...

Heard from an old friend today that found the blog on his own. He retired nine years ago, that is why I didn't have his contact info. His...

Pulled in at 11:30pm Friday. An hour in and we have everything in from the car and most it in the right place. That is all for now, tired...

Road trip! Starts today. Last road trip I will take I fear but hope is always there and maybe I will. Logic looms and defeats hope...

Today was a fairly exciting one for me. I went out and went to several stores today. First up was going to a UW Clinic and getting blood...

Woke up several times last night. Last time was 5am and I stayed up. Was having a difficult time breathing through my nose due to...

And I have been looking for this dude for three months! Tim was who I was assigned to when I made apprentice pressman at the Madison...

Jim Creeron stopped yesterday and we had a nice chat. I knew Jim from Frank Allis Elementary school where we first met. We hung out a bit...

Jim Pagel and his wife invited me over to their house for Thanksgiving. I had a great time due in part to their understanding of my...

The good news? I was scheduled for my Botox procedure. The bad news? Not until January 8th, 2022. So I will have to deal with drooling a...

So I have been waiting to get schedule for a procedure to resolve my excess drooling. I think that is cause of the most recent attacks....

Well I had a good day until the end of it. About 11:30am I was getting ready to go to bed and I had to cough. I coughed. Then that...