Russ Newton
2022! Never thought I would see it.
When I was diagnosed on 11/01/19 I was given 22 months to live. I was diagnosed with Bulbar On set ALS, the most deadly form of it. It...
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Russ Newton
- Jan 1, 2022
- 1 min
Minor Health update
So I have not had another fall or episode of not breathing in five days. Taking steps to work around my balance issues and staying...
155 views2 comments
Russ Newton
- Dec 31, 2021
- 1 min
David Pagel Guest Post.
Self Pity? As I told you long ago, I have been and remain absolutely blown away by how positive and vibrant you've been able to remain...
144 views1 comment
Russ Newton
- Dec 30, 2021
- 2 min
Self-Pity
I fell into the trap of self-pity a few days ago. Not sure why. But the circumstances I find myself in overwhelmed me for the first time....
183 views15 comments
Russ Newton
- Dec 29, 2021
- 2 min
Dorothy, I don't think we are in Texas anymore!
From my front Porch today around 4pm after 4 inches of snow. Off to the left from my front porch. And this is what I saw and I decided to...
120 views0 comments
Russ Newton
- Dec 29, 2021
- 1 min
Thank you to all that sent me a Christmas gift!
Thank you to all that sent me a gift to make this last Christmas for me a grand one. I felt like a little kid all over again Christmas...
101 views0 comments
Russ Newton
- Dec 27, 2021
- 3 min
Fast Time. Made it in two days. Jim Lefko Pictured.
And that isn't the whole story. I met with a friend on Sunday at my home in San Antonio I made at the San Antonio Express News when we...
254 views12 comments
Russ Newton
- Dec 26, 2021
- 1 min
Last update for a few days.
First, hydration works! No episode last night, what a relief. Now I just have to keep putting fluids in the engine to keep it running...
117 views10 comments
Russ Newton
- Dec 25, 2021
- 1 min
Correction. I am a dumb ass.
Well I went back to sleep and I woke up at 7am coughing and not able to breathe. And like the last time, it happen twice. But this time I...
135 views1 comment
Russ Newton
- Dec 25, 2021
- 1 min
Sorry to start Christmas with breathing news.
But I woke up at 3:53am today and started coughing really bad which is now how I trigger an episode of not breathing. I sat up, then walk...
125 views1 comment
Russ Newton
- Dec 23, 2021
- 1 min
Blown Away.
By Nina Lee's package to me today. I opened it up and there were two smaller boxes in there. One said open right away, contains a...
239 views7 comments
Russ Newton
- Dec 22, 2021
- 2 min
Adventures with solid food. (blended down so I can ingest via my peg tube)
Stuffed shells tonight. And not made as suggested by this photo. I made mine in a stove top pan. Added some sausage flavored pasta sauce...
90 views3 comments
Russ Newton
- Dec 21, 2021
- 1 min
The drooling has stopped!
At around noon today I took the rag out of my mouth for the first time in 9 days. And I have had it out for an hour and half. So five...
143 views14 comments
Russ Newton
- Dec 18, 2021
- 1 min
A family picture.
Left to right. Bill and his wife Jane Cruckson. Robert and Dolores Newton. Fred and Vivian Cruckson. And the Patriarch of the family,...
89 views0 comments
Russ Newton
- Dec 17, 2021
- 2 min
ACT for ALS Passes in the Senate! December 16, 2021
Tonight infused us with hope and inspiration. Tonight, ACT for ALS passed in the Senate because tens of thousands of you took action...
110 views1 comment
Russ Newton
- Dec 17, 2021
- 1 min
Best Beef Ribs!
This is the smaller of the two racks of ribs I got today from 2M. And they blew me away again. They gave me a free rack of ribs, again....
89 views0 comments
Russ Newton
- Dec 16, 2021
- 1 min
Delayed Gratification
The good news? I did get my Botox treatment today. The not so good news? Rags will be part of my future for a week. That is how long it...
98 views2 comments
Russ Newton
- Dec 15, 2021
- 1 min
Oreo's and Milk. Just because sometimes.
So this post is for anyone with ALS that has lost the ability to eat by mouth. Sometimes, when I am a little low about not being able to...
120 views2 comments
Russ Newton
- Dec 14, 2021
- 2 min
Scratch that, good news!
I saw my ALS doctor in San Antonio today. And I was apparently able to impress on her and her associate how badly I needed relief from...
171 views9 comments
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