Discover Russ Newton ALS Ride of a Lifetime

Well ALS has really got its hooks into me now. Last night I had a dream about it. My dream started with me in bed with my ex-wife Sue. I...

As you might imagine it, I have had the opportunity to think hard about this subject since I was diagnosed with a 100% fatal illness....

"I don't need the vaccine," they said while enjoying life without polio, tetanus, hepatitis A, hepatitis B, rubella, measles, whooping...

So promised in this earlier post I would finish the story later. Not one of my proudest moments either I am ashamed to say. I have...

I think enough time has passed and the raw feelings I had over her untimely passing have faded enough to talk about some of the good...

I hope you can appreciate why I desire a button access vs. this dangling 16 inches of tube hanging out of my body. And please note, I am...

The good news is I made an 856 mile trip by car from just outside of Nashville, Tennessee to my home in San Antonio. Did it in one shot,...

So I told you all that we were heading for Brownsville, TX. But we decided to skip it and ended up in Galveston, TX. On the water, at a...

Made my way back to Big Bend with my son this time. Still an amazing place. If you have not been, put it on your bucket list please. It...

So here it is. Getting the stomach tube was described to me a "minor surgery" Indeed, it was an out patient (meaning I drove to the...

visiting me this Friday. My last hurrah with him will be an epic road trip (following Covid restrictions of course). Our first stop will...

A quick update for the loyal readers. I have not nor will be posting much for the next holiday week. But I want you all to know I am...

I posted below my writing part of an article from US National Library of Medicine. I underlined the parts that were relevant to me. I...

Well, I must say, I have had more fun days than today. I have my stomach tube placed now and man does it hurt! I just popped 800mgs of...

So I met with the Gastroenterologist and this is the plan. Next Tuesday, the 10th, I have to take a drive through Covid test. Then on...

Hi, Russ Newton here. I was diagnosed with Bulbar onset ALS on November 1st, 2019. I retired that day and am sitting here on November...

The DMV experience in Texas is usually so different than California. When I was in my last month in California, I had to get a driving...

U-T president got leg up from predecessor By Logan Jenkins Jul 14, 2015 at 2:03 PM Russ Newton. After an evening community meeting in...

I was diagnosed on 11/01/19 so I am one year into my ALS journey. At this point I have no physical symptoms, muscle loss, loss of...

So because I detoured to see Gene Bell, I had set myself up for a longer drive than I planned. So I stopped that night at hotel 40 miles...