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  • Russ Newton

Latest kick in the ass, getting use to this now. Read from bottom up please.

Mejaki, Marie5:41 PM (34 minutes ago) to me Hi Russ, Unfortunately yes. These are all oral medications, which are only approved to be taken by mouth. I will keep you in mind if the requirements change or if we have any new trials that would allow meds to be taken by tube. You can always check https://clinicaltrials.gov/ to view available trials. Thanks for your interest and take care, Marie Marie Mejaki, BA, CCRC She/her/hers Clinical Research Coordinator III Department of Neurology Medical College of Wisconsin 8701 Watertown Plank Road Milwaukee, WI 53226 Office Phone: 414-955-0624 | Fax: 414-955-0035 Upcoming OOO: Oct 7-11, Oct 15, Nov 4-8 From: Russ Newton <rnewt1960@gmail.com> Sent: Tuesday, October 5, 2021 10:32 AM To: Mejaki, Marie <mmejaki@mcw.edu> Subject: Re: Trial ATTENTION: This email originated from a sender outside of MCW. Use caution when clicking on links or opening attachments. Marie, I am sorry, I have to take everything through my port now though I am still fully mobile. Does that eliminate me from this trial? Russ On Tue, Oct 5, 2021 at 9:47 AM Mejaki, Marie <mmejaki@mcw.edu> wrote: Hi Russ, Thanks for reaching out. Are you referring to the HEALEY Platform Trial or something else? Are you able to take any medications by mouth? Thanks for your time, Marie Marie Mejaki, BA, CCRC She/her/hers Clinical Research Coordinator III Department of Neurology Medical College of Wisconsin 8701 Watertown Plank Road Milwaukee, WI 53226 Office Phone: 414-955-0624 | Fax: 414-955-0035 Upcoming OOO: Oct 7-11, Oct 15, Nov 4-8 From: rnewt1960@gmail.com <rnewt1960@gmail.com> Sent: Monday, October 4, 2021 3:51 PM To: Mejaki, Marie <mmejaki@mcw.edu> Subject: Trial ATTENTION: This email originated from a sender outside of MCW. Use caution when clicking on links or opening attachments. Ms. Mejaki, I have bulbar onset ALS. It is inherited in nature. I can no longer speak or take food orally but I am still fully mobile. I am interested in joining your trial. Any consideration would be most appreciated. Russ Newton 9306 Golden Hue Blvd. Verona, WI 53593 (608) 598-7003 ( No calls, only text please)

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