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  • Writer's pictureRuss Newton

Happened again!

Updated: May 24, 2021


Last night when I went to bed I took one of the two medicines I have to slow down ALS. It comes in a pill format. I am trying to use my mouth as much as I can. I am fighting very long odds but I will fight to the end. Anyways, the way I have to take pills now is by throwing them to the back of my mouth into the zone of no return. Last night I did that but couldn't swallow the pill. So I took a little sip of water and bam! It happened again, I start whooping for air. After about 30 seconds I was able to breath normally again. But this tends to rule out a food allergy. I have messaged my doctor about this and hopefully then can figure out what is going on with my breathing. I am sure it is ALS related.

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bobrouill
bobrouill
May 22, 2021

I have something similar especially if I drink through a straw and it hits the back of my throat, it caused my throat to close up. I have to will myself to relax and it will open up after about 45 seconds but it scares everyone around me more than it does me

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Russ Newton
Russ Newton
May 22, 2021

Thanks I will do that! I am pretty relaxed about it. I know to stay calm and slow everything down. But I would like to understand why two different actions (smoothie and taking a pill) result.in the same thing.My doctor just said stay away from raspberries Can't imagine I should stay away from pills!

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Mark Dtayo
Mark Dtayo
May 22, 2021
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A mindful response is needed when my issues occur. Just gotta keep your wits about you. I think a specialist in this area will be able to help! Do it as soon as you can! The process they used for me is that they setup an xray(?) to video and record my swallowing in real time. They had me swallow a variety of substances. It is rather amazing. deal It will helo.

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