Dead man Talking (Updated 11/03/2020)
Updated: Nov 4, 2020
Hi, Russ Newton here. I was diagnosed with Bulbar onset ALS on November 1st, 2019. I retired that day and am sitting here on November 3rd, 2020 with only difficulty speaking and eating. No secondary symptoms as of yet. This is amazing my doctors I myself and somewhat more relaxed about this. I am a little worried about getting a feeding tube, it feels like a step in the wrong direction.
I am about to go on a lengthy Motorcycle trip to Key West with an old friend, Mark Dtayo. On the return, we plan on going to the Superbowl, hopefully to see the Green Bay Packers vs. the AFC champion. (Probably Kansas City if if I had to guess). More to come!