Matt NewtonJun 71 minMemorial Services for RussRuss made things very clear to me - after he died, he wanted to pay for a big party for all of his friends. A private space for food,...
Russ NewtonMay 221 minRussell John Newton, 1960 - 2022This Saturday Russ took control of his own destiny, defeated ALS, and left this earth. Over the next few days many words will be shared...
Russ NewtonMay 191 minVisitors.Mary, Greta Nashold and Scott McIntosh Steve Nashold and Annette Craig.
Russ NewtonMay 151 minTime to say goodbye.The not being able to walk is coming back and picking up steam. And that is going to force a decision on me. And I am leaning heavily...
Russ NewtonMay 141 minWill to liveI still have a strong will to live. But my intellect is telling me I am close to going. Not because ALS is killing me, which it most...
Russ NewtonMay 112 minALS lesson for today.By Dirk Zegel This is how ALS works: In the rough endoplasmic reticulum (RER), just outside the nucleus, eIF2 (eukaryotic translation...
Russ NewtonMay 1011 minSo, you have ALS. What can you expect,As I have said before, typing is getting difficult for me. I do spend a lot of time on Reddit and I have posted most of my comments...
Russ NewtonMay 101 minPeople outside my window w/kids (below frame) looking at the animals for a long time. And ALS updateAnd I discovered yet another limitation of ALS. I put on my gait belt at the request of my 100lb soaking wet care giver tonight. And as a...
Russ NewtonMay 92 minALS Being ThereSupport Advice ALS brings with a multitude of changes for the person and their families and beyond. All the obvious physical, emotional...
Russ NewtonMay 81 minMinor updateWell ALS is evolving and not always in a negative way though never positive. I have gone from sucking my lungs out every hour on the hour...
Russ NewtonMay 61 minTodays outlookis very good! I had my first real shower since February 28th and it has really helped my out look today. i feel 100% clean. Thanks to my...
Russ NewtonMay 51 minUpdate on this sucksSo, as the day progressed I slowly gained back much of my ability to walk. But hold off on celebrating.. ALS has a very predictable path....
Russ NewtonMay 51 minLatest addition of equipmentA stair lift to allow me access to the upper level of my home.
Russ NewtonMay 41 minThis sucks.So now I am losing balance when I stand up and tipping over is a very real risk. I am days away from a full wheel chair existents and not...
Russ NewtonMay 310 minGood explanation of current situation in the Supreme court by Ronald Brownstein. Long but worth it.The supreme court has set itself on a collision course with the forces of change in an inexorably diversifying America. The six...
Russ NewtonMay 32 minRealize this is a controversial subject but worth posting this partial article from the Atlantic. The argument for abortion, if made honestly, requires many words: It must evoke the recent past, the dire consequences to women of making...
Russ NewtonMay 13 minMy current limitations from ALS.This may be a long post as difficult as it is for me to type, the number of symptoms is excessive. Can't Eat. Can't talk. Steady on my...
Russ NewtonApr 291 minGuest Post - Roxanna PopescuThank you for writing back. (And there's no need to reply.) I imagine words cannot offer any or much comfort or peace, but if they could,...