Discover Russ Newton ALS Ride of a Lifetime

Russ made things very clear to me - after he died, he wanted to pay for a big party for all of his friends. A private space for food,...

This Saturday Russ took control of his own destiny, defeated ALS, and left this earth. Over the next few days many words will be shared...

And the good news just keeps on coming in.

Stefan Beke-Bramkamp from Germany, Russ and Bob Veyera.

Mary, Greta Nashold and Scott McIntosh Steve Nashold and Annette Craig.

The not being able to walk is coming back and picking up steam. And that is going to force a decision on me. And I am leaning heavily...

I still have a strong will to live. But my intellect is telling me I am close to going. Not because ALS is killing me, which it most...

By Dirk Zegel This is how ALS works: In the rough endoplasmic reticulum (RER), just outside the nucleus, eIF2 (eukaryotic translation...

As I have said before, typing is getting difficult for me. I do spend a lot of time on Reddit and I have posted most of my comments...

And I discovered yet another limitation of ALS. I put on my gait belt at the request of my 100lb soaking wet care giver tonight. And as a...

Support Advice ALS brings with a multitude of changes for the person and their families and beyond. All the obvious physical, emotional...

Well ALS is evolving and not always in a negative way though never positive. I have gone from sucking my lungs out every hour on the hour...

is very good! I had my first real shower since February 28th and it has really helped my out look today. i feel 100% clean. Thanks to my...

So, as the day progressed I slowly gained back much of my ability to walk. But hold off on celebrating.. ALS has a very predictable path....

A stair lift to allow me access to the upper level of my home.

So now I am losing balance when I stand up and tipping over is a very real risk. I am days away from a full wheel chair existents and not...

The supreme court has set itself on a collision course with the forces of change in an inexorably diversifying America. The six...

The argument for abortion, if made honestly, requires many words: It must evoke the recent past, the dire consequences to women of making...

This may be a long post as difficult as it is for me to type, the number of symptoms is excessive. Can't Eat. Can't talk. Steady on my...

Thank you for writing back. (And there's no need to reply.) I imagine words cannot offer any or much comfort or peace, but if they could,...